Gerry Adams TD raises Orkambi with Taoiseach
Sinn Féin Party leader and Louth TD Gerry Adams has urged the government to resolve urgently the crisis around the provision of the cystic fibrosis drugs Orkambi and Kalydeco.
A major demonstration is being planned for next Wednesday March 1st outside the Dáil.
Deputy Adams said:
“Before Christmas Oireachtas members heard distressing first-hand accounts of CF sufferers and their families. Orkambi and Kalydeco can save lives. They can dramatically improve the well-being of hundreds of patients.
"At the beginning of February media reports suggested that HSE drug committee had not recommended the use of the drug Orkambi for more than 550 Irish CF sufferers.
"Today, I raised the availability of Orkambi with the Taoiseach. His response was deeply disappointing and failed to clarify the current state of discussions between the HSE and the drug company Vertex.
"New evidence has now emerged to support the case for approving Orkambi. According to Cystic Fibrosis Ireland this new data shows Orkambi will save the health system even more than was previously estimated.
"Whatever decision the HSE makes the ultimate decision on the availability of Orkambi and Kalydeco will rest with the Minister and the Government.”