Negotiations must yield results for Cystic Fibrosis sufferers - Gerry Adams TD
Sinn Féin President, Gerry Adams TD, along with Sinn Féin Spokesperson for Health, Louise O'Reilly TD, met with Vertex, the manufacturer of the cystic fibrosis treatments Orkambi and Kalydeco on Wednesday 5th April.
Following the meeting Gerry Adams said;
“Sinn Féin has again met with Vertex in an effort to assist in making Orkambi and Kalydeco available to those Cystic Fibrosis (CF) sufferers whom it will benefit.
"I impressed upon the Vertex representative that conflicting media reports and uncertainty are negatively impacting the lives of CF sufferers as their negotiations with the HSE continue.
"Both Teachta O’Reilly and I have met many CF patients and their families and we have been moved by their daily battles with CF.
"We believe that these citizens should be able to avail of the most effective treatments which have the potential to enhance their quality of life.
"Vertex and the HSE must conclude negotiations and enable access to these CF medications for sufferers as a matter of urgency.”