Sinn Féin motion passed to give voice to parents of children with complex medical needs
In the Seanad today, Sinn Féin Senator Máire Devine tabled a motion that was passed with cross-party support.
The motion will ensure that a non-HSE parent representative will be represented on a HSE Steering group for Children with Complex Medical Needs.
She was congratulated for putting forward the motion by other Senators, who reiterated that it was a vitally important issue and one that they were happy she had tabled.
Speaking after the vote, Senator Devine said:
“This was a no brainer. Irony of ironies is that, a couple of years ago, the HSE used a steering group that included service users to write their own policy of service user engagement. It is beyond belief that the inclusion of parent’s voices wasn’t standard in the first place.
“As my motion acknowledges, parents are the experts by experience when it comes to caring for their kids. The HSE have so much to gain by including them fully in the decision making process.
“I am glad that this motion went above party politics and was passed by the Seanad.”