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Brady welcomes publication of haemochromatosis report

31 October, 2018 - by Mickey Brady

Sinn Féin MP Mickey Brady has welcomed the publication today of ‘Living with the impact of iron overload’ a report which highlights the lived experience of people living with the genetic disorder haemochromatosis.

The Newry and Armagh MP said:

“I was glad to pick up a copy of this report in Westminster today and to speak with representatives of haemochromatosis charities.

“The report highlights the need for a greater awareness of haemochromatosis and the current clinical recommendations surrounding the condition.

“Haemochromatosis is a long-term condition which sees the body absorb too much iron.

“This iron can then be deposited to different parts of the body which can lead to a range of symptoms, such as; fatigue, joint pain, diabetes, heart disease, and liver disease to name a few. 

“It has sometimes been dubbed the ‘Celtic curse’ and it is estimated that among the Irish and other Celtic peoples 1-in-83 people has the condition, with 1-in-5 of us potentially carrying the gene.

 “As the report states haemochromatosis is probably ‘the most common condition you have never heard of’. Great awareness of the condition is the first step to provide the necessary and appropriate treatment and care.

“Sinn Féin would support calls for greater research to better characterise the symptoms and treatment of haemochromatosis.”

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