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Senator Rose Conway-Walsh welcomes long awaited Spinraza approval

11 June, 2019 - by Rose Conway-Walsh


Sinn Féin Mayo Senator Rose Conway-Walsh has welcomed the decision taken at cabinet this morning to approve Spinraza for children with SMA-Spinal Muscular Atrophy.
 
Speaking after the decision was announced, Senator Conway-Walsh said:
 
"I am thrilled with the decision and I commend the families who never gave up. Over the months I have watched these families continue the battle to secure Spinraza and I also witnessed their devastation when approval was refused in February. 
 
"I am especially delighted for Grace O’Malley and Cillian Mearns, both from Mayo, who will now be able to enjoy a quality of life that they have not experienced before.

"Right throughout the campaign I have highlighted that time is of the essence, and I hope that all necessary steps are taken to ensure that access to the treatment is immediate."

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